How to make the best decisions about treatment
Every treatment has trade-offs. The best treatment for you may be different from the best treatment for your friend or neighbor.
We all have individual needs, and different things are important to each of us.
If you play a part in making decisions about your treatment, you are likely to recover quicker than if you do not.1 It is even more important to take part in making decisions when doctors do not know which treatment is best for you. Doctors should base their treatment decisions on what the research tells them. If your doctor knows what the research says about how to treat a condition and uses this information to make decisions about treatment, then he or she is practicing evidence-based medicine. This is a good way to practice medicine because it means your doctor is using evidence from medical studies that have looked at what happens to many thousands of people.
If you play a part in making decisions about your treatment, you are likely to recover quicker than if you do not.1 It is even more important to take part in making decisions when doctors do not know which treatment is best for you. Doctors should base their treatment decisions on what the research tells them. If your doctor knows what the research says about how to treat a condition and uses this information to make decisions about treatment, then he or she is practicing evidence-based medicine. This is a good way to practice medicine because it means your doctor is using evidence from medical studies that have looked at what happens to many thousands of people.
- Check out all your choices.
- Make sure you understand the risks and benefits of treatments or of doing nothing.
- Make sure you understand how the risks and benefits will affect you specifically.
- Make sure you have enough information to make a choice.
- How involved do I want to be in making decisions about treatment?
- What will happen if I do nothing?
- What are my choices for treatment?
- What are the benefits and harms of each treatment?
- How do the benefits and harms balance out for me?
- Do I know enough to make a choice?
- How can I work through my choices?
- Your personal situationDoes the treatment have side effects that will be tough for you to live with? For example, maybe you have small children and so you can't take medication that makes you sleepy.
- How you have to take the medicationMaybe you don't like taking pills and would prefer to get your medication in the form of a skin patch.
- Your preferences for treatment and what you expect from itWould you find it difficult to live with the risk of any serious side effects even if the risk is small? Would you find it unbearable to lose your hair as a side effect of the medication you are taking? Even if the treatment increased your chances of staying alive after being diagnosed with breast cancer? What's the most important thing you want the treatment to do for you? If you have heart failure, what is more important to you to breathe more easily at night or to have less swelling around your ankles?
- How you cope with side effectsIf you have high blood pressure, for example, you may decide that you can put up with the annoying dry cough caused by some medications. For you, the benefit of the treatment (reducing your risk of heart disease and of having a stroke) might outweigh the downside of the treatment (the cough).But many people with high blood pressure don't feel ill. It can be harder to put up with side effects from drugs when you don't feel sick. For example, if you feel well but your medication for high blood pressure makes you dizzy, you may not want to put up with that side effect. But if you are sick with a chest infection you may put up with the diarrhea that is caused by taking an antibiotic to treat your infection. You should talk with your doctor before stopping any medication that he or she has given you. Sometimes another medication may work just as well and have fewer side effects.
- How big the benefit may beTreatments don't always cure symptoms. Your may decide that it is not worth taking a medication because the possible benefit is not big enough. You need to make sure you fully understand what the benefit of a treatment is before you stop it. If you have high blood pressure, you may think the medication you take every day is a waste of time. You feel OK. So why take the tablets? But if you stop taking them, you increase your risk of having a stroke or a heart attack.
- Your ageIf you are 40, for example, and have osteoarthritis and your hip always hurts, you may want to weigh the benefits and harms of having your hip replaced. If you have a hip replacement, your pain will go away and you'll be able to get around better. You won't have to take painkillers all the time. But your artificial hip may need replacing after 10 or 20 years. This is because your artificial hip may have worn out by then. You also have to weigh the harms of possible complications from surgery.
- Your sexual activityYou may decide that side effects that interfere with your ability to have sex are especially important to you. Make sure you ask your doctor about sexual side effects if they are important. If you are a man, you may find that some medications interfere with your ability to have an erection. You may run the risk of having problems getting an erection or becoming incontinent if you have some surgical procedures, such as treatments for prostate cancer or other prostate problems. (Incontinence is the term doctors use when a person can't always control when they go to the bathroom.) Your doctor should be able to talk freely about sexual issues with you. You certainly have the right to discuss them.
- You will not live longer if you have your whole breast removed instead of having just the lump removed (breast-conserving surgery). There is also no increase in the risk of your breast cancer coming back if you have breast-conserving surgery.4
- If you keep your breast, you have a 90 percent chance that your breast will look good afterwards. But you will need radiation therapy after surgery. And the side effects from that can make you feel tired and sick. If you have children, for example, you need to know that radiation therapy can be exhausting and stressful.
- If you have breast-conserving surgery, there is also a risk that not all of the cancer will be removed if just the lump is taken away. About 1 woman in 10 needs surgery again.
- If your whole breast is removed you may feel mutilated. However, you can have breast reconstruction surgery to make your breast look more like your other one.
Sources for the information on this page:
- Arora NK. McHorney CA Patient preferences for medical decision making: who really wants to participate? Medical Care. 38(3):335-41, 2000
- Deber RB, Kraetschmer N, Irvine J What role do patients wish to play in treatment decision making? Archives of Internal Medicine. 156(13):1414-20, 1996 1996
- Flood AB. Wennberg JE. Nease RF Jr. Fowler FJ Jr. Ding J. Hynes LM The importance of patient preference in the decision to screen for prostate cancer. Prostate Patient Outcomes Research Team. Journal of General Internal Medicine. 11(6):342-9, 1996
- Dixon M;Rodger A; et al. Breast cancer: non-metastatic Clinical Evidence 1218-1246 2001
This site is for your information only. For medical advice, consult a health professional.
© BMJ Publishing Group Ltd 2007. Last updated JUN 14, 2002
© BMJ Publishing Group Ltd 2007. Last updated JUN 14, 2002








